Things I wish I had said and things that need to be said

To: the hospital staff, the healthcare professionals, medics and police officers and to everyone

What would you do if this was your child?

No, OCD is not keeping things in order.

Do you have clinically diagnosed OCD?

Does your need to have things in order take hours of your time during the day?

Does it interfere with your daily life functioning, because if not, do not tell my child that you have OCD and that it is normal.

Obsessive Compulsive Disorder is a DISORDER

Obsessive Compulsive Disorder is a mental illness where they brain is not functioning properly

Obsessive Compulsive Disorder is an illness and not an adjective

Obsessive Compulsive Disorder is as real as juvenile diabetes and cancer and can be deadly

Suicide is the second leading cause of death in children ages 10-14

De-Escalation techniques. are essential in a crisis situation where someone is angry and violent

Observing officer, did you see the difference in my child’s behavior with the officers who used those techniques a week and a half ago compared to. the officers standing before you and are not following that protocol but instead are in dad mode.

Why are you using the safe room as a holding cell for my child?

Why the hell does your “safe room” have concrete walls???

Why is our system so broken that my child has been. back to the emergency room more than 5 times in the past 3 months.

Why won’t anyone help my child?

Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) is a clinical diagnosis given to children who have a dramatic – sometimes overnight – onset of neuropsychiatric symptoms including obsessions/compulsions or food restriction.

I copied that statement from Stanford website.

Why does my child’s psychiatrist not recognize PANS?

Why won’t anyone listen to us?

Why are my child’s doctors ignoring these signs and symptoms?

Why am I the only one who sees my child calling out for help?

Why was the police officer so confrontational with my child yesterday and why did he tell her that she is 14 and therefore needs to know better?

Why do people expect kids and especially teenagers to act like adults but do not treat then like adults?

Why do people not realize that the human brain and its development of higher level cognition does not fully develop until the late 20s.

Why can’t people understand that a 14 year old brain does not function like a 25 year old brain?

Why do people not recognize that my child has post traumatic stress disorder?

Why do the professionals not see that if my child has PTSD that she is triggered by different situations and you can not talk her out of it?

Does the medical community see PTSD as a behavior disorder?

Why is the psychiatric unit of the hospital called behavioral health?

Why are you telling my child that her behavior is her fault and that she can control it if she just chooses differently?

Why do we treat children differently if they have a psychiatric diagnoses vs a “medical diagnosis”?

Why are psychiatric illness not considered medical illnesses?

Who decided that the brain function is seperate from the body?

Who decided that because an illness manifests with behavior changes then it needs to be treated differently?

Why do the people who are put in the position to help children with mental illness have little education in mental illness, in psychiatric disorders and how the brain functions?

Why is getting the specialized treatment that my child needs cost prohibitive?

Why am I not able to search for the Charlotte PANDAS/ PANS treatment center?

Why is there not funding to assist people who can not afford the high cost of specialized centers?

Why is healthcare in the United States tied to having the financial means to get the help that is needed?

Why are some diagnoses treated without regard to what people can pay and others are not?

Why is your child with cancer more important than my child with severe Obsessive Compulsive Disorder?

Why do the professionals not recognize that they are failing to treat people and diagnosis people correctly?

Why should my child suffer because I do not have the financial means to take them to a specialized clinic?

Why won’t anyone help us?

Why won’t anyone help my child?


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